| BRIEF RESEARCH ARTICLE |
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| Year : 2019 | Volume
: 63
| Issue : 3 | Page : 254-257 |
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Exploring spinal muscular atrophy and its impact on functional status: Indian scenario
Meruna Bose1, Shrutika Dilip Parab2, Samidha M Patil3, Nehal A Pandey3, Gargi V Pednekar3, Sarabjyot Singh Saini3
1 Professor and Head, Department of Neuro-Physiotherapy, MGM School of Physiotherapy, Navi Mumbai, Maharashtra, India
2 Assistant Professor, Department of Neuro-Physiotherapy, MGM School of Physiotherapy, Navi Mumbai, Maharashtra, India
3 Intern, Department of Neuro-Physiotherapy, MGM School of Physiotherapy, MGM Institute of Health Sciences, Navi Mumbai, Maharashtra, India
Correspondence Address:
Meruna Bose
MGM School of Physiotherapy, Sector-1, Kamothe, Navi Mumbai - 410 209, Maharashtra
India
 Source of Support: None, Conflict of Interest: None  | Check |
DOI: 10.4103/ijph.IJPH_239_18
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The present study aimed to find out the effect of disease-related impairments on functional status in individuals with spinal muscular atrophy and identify perceived barriers to undergo physiotherapy. The cross-sectional observational study was conducted on 90 participants from January to March 2018 using validated patient-reported questionnaire via electronic mail, along with Fatigue Severity Scale and ACTIVLIM. Results revealed that difficulty in sitting was due to scoliosis (36%) and muscle weakness (23%), the latter also contributing toward difficulty in standing and walking (59%). Inverse relationship exists between ACTIVLIM measures and fatigue severity scores (r = −0.338, P < 0.05), body mass index (r = −0.225, P < 0.05), age (r = −0.258, P < 0.05), and duration of illness (r = −0.257, P < 0.05). Economic constraints (27%), difficulty in traveling (17%), and lack of family support and mobility (14%) are perceived barriers to undergo physiotherapy. Functional impairments and identified barriers must be addressed as part of rehabilitation.
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