Indian Journal of Public Health

BRIEF RESEARCH ARTICLE
Year
: 2019  |  Volume : 63  |  Issue : 3  |  Page : 254--257

Exploring spinal muscular atrophy and its impact on functional status: Indian scenario


Meruna Bose1, Shrutika Dilip Parab2, Samidha M Patil3, Nehal A Pandey3, Gargi V Pednekar3, Sarabjyot Singh Saini3 
1 Professor and Head, Department of Neuro-Physiotherapy, MGM School of Physiotherapy, Navi Mumbai, Maharashtra, India
2 Assistant Professor, Department of Neuro-Physiotherapy, MGM School of Physiotherapy, Navi Mumbai, Maharashtra, India
3 Intern, Department of Neuro-Physiotherapy, MGM School of Physiotherapy, MGM Institute of Health Sciences, Navi Mumbai, Maharashtra, India

Correspondence Address:
Meruna Bose
MGM School of Physiotherapy, Sector-1, Kamothe, Navi Mumbai - 410 209, Maharashtra
India

The present study aimed to find out the effect of disease-related impairments on functional status in individuals with spinal muscular atrophy and identify perceived barriers to undergo physiotherapy. The cross-sectional observational study was conducted on 90 participants from January to March 2018 using validated patient-reported questionnaire via electronic mail, along with Fatigue Severity Scale and ACTIVLIM. Results revealed that difficulty in sitting was due to scoliosis (36%) and muscle weakness (23%), the latter also contributing toward difficulty in standing and walking (59%). Inverse relationship exists between ACTIVLIM measures and fatigue severity scores (r = −0.338, P < 0.05), body mass index (r = −0.225, P < 0.05), age (r = −0.258, P < 0.05), and duration of illness (r = −0.257, P < 0.05). Economic constraints (27%), difficulty in traveling (17%), and lack of family support and mobility (14%) are perceived barriers to undergo physiotherapy. Functional impairments and identified barriers must be addressed as part of rehabilitation.


How to cite this article:
Bose M, Parab SD, Patil SM, Pandey NA, Pednekar GV, Saini SS. Exploring spinal muscular atrophy and its impact on functional status: Indian scenario.Indian J Public Health 2019;63:254-257


How to cite this URL:
Bose M, Parab SD, Patil SM, Pandey NA, Pednekar GV, Saini SS. Exploring spinal muscular atrophy and its impact on functional status: Indian scenario. Indian J Public Health [serial online] 2019 [cited 2020 Aug 9 ];63:254-257
Available from: http://www.ijph.in/article.asp?issn=0019-557X;year=2019;volume=63;issue=3;spage=254;epage=257;aulast=Bose;type=0