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SPECIAL ARTICLE
Year : 2013  |  Volume : 57  |  Issue : 4  |  Page : 242-247  

Universal health care: Pathways from access to utilization among vulnerable populations


Associate Professor, Centre of Social Medicine, Jawaharlal Nehru University, New Delhi, India

Date of Web Publication18-Dec-2013

Correspondence Address:
Sanghmitra S Acharya
Associate Professor, Centre of Social Medicine, Jawaharlal Nehru University, New Delhi - 110 067
India
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Source of Support: None, Conflict of Interest: None


DOI: 10.4103/0019-557X.123260

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   Abstract 

The present paper discusses universal access to health-care in the light of the barriers faced by some vulnerable individuals and groups due to caste based identities. Factors such as perception of self, availability of services, sensitivity of the providers determine access and consequently affect utilization among vulnerable populations. The paper examines the inter-linkages between these factors. Efforts, which create enabling environment have been discussed to highlight impeding and enhancing factors, Field based research has been used to reflect on some of these factors and possible best practices.

Keywords: Access, Discrimination, Health, Self-perception, Utilization, Vulnerable populations


How to cite this article:
Acharya SS. Universal health care: Pathways from access to utilization among vulnerable populations. Indian J Public Health 2013;57:242-7

How to cite this URL:
Acharya SS. Universal health care: Pathways from access to utilization among vulnerable populations. Indian J Public Health [serial online] 2013 [cited 2019 Sep 22];57:242-7. Available from: http://www.ijph.in/text.asp?2013/57/4/242/123260


   Introduction Top


The notion of universal health coverage is endowed with the benevolence of ensuring health and wellbeing for all. Universal health-care refers to "organized health-care systems, which are based on the principle of universal coverage for all members of society, including health financing and service provisioning." [1] However, the translation of these ideas into tangible measures is a path fraught with many barriers. Although on the one hand, the State with its limited resources, attempts to provide for people's health, on the other, the particular nature of social institutions that make up the fabric of societies in South Asia, particularly India, make access to these resources difficult for some people more than the others. Thus large sections stand deprived of or are denied access to health-care resources owing to their social identities. Although there is much evidence in existing literature of the role played by gender and economic factors in this exclusion, caste based determinants and the consequences of deprivation that they contribute to have not found adequate representation. The discussion on caste in the context of health-care resources has largely been as associated with the lens of gender [2],[3],[4],[5] and social and economic indicators. [6] There is evidence of the role that caste based identities play in accentuatingdeprivation. [7],[8],[9],[10],[11],[12] The existing vulnerabilities of poor access to education, skills, lack of awareness stand worsened or mitigated depending on the caste that people belong to. Therefore, it is imperative to examine the social heterogeneity of the people for whom the health care needs to be universalized; and to understand the barriers, which impede the pathways toward utilization of care. Access leads to utilization in consonance with availability of services. Utilization is also dependent on perception of self. The present paper, therefore, examines pathways from access to utilization of resources and services. It aims to understand discrimination as a barrier in universal access to health-care and plausible means of creating enabling environments for inclusion of those socially excluded.


   From Access to Utilization through Availability and Perception of Self Top


Access and final utilization results from awareness, information, knowledge and conducive environment to use the services and resources. It also hinges on the capability to overcome inhibitions and obstructions for interactions with providers and providing institutions. Inhibitions largely arise due to no or few opportunities for education and income generating activities leading to poor living conditions, housing, nutrition, life-style and health and social environment. Availability of resources is governed by the procurement chain- from the place of generating the resource, through the market to the providing agencies or individual providers to the users. The policy regime, market, media, advertisement, motivation and buying capacity of the user collectively influence availability of resources. Perception of the self too is both collective and individual. It has elements of the image created by others. Positive images enhance confidence by limiting inhibitions, and are cherished, while negative images, particularly when emanating from biases and stereotypes, are resented and continuous efforts are made to counter them.

Enabling environment for vulnerable populations * can be created through institutions by ways of policies and programs and the sensitivity of the providers and co-users of the resources and services. Enhancing factors include the positive self-image consequent of propensity which allows access in contract to the negative self-image. Thus, a matrix of five factors juxtapose themselves to transcend from access to utilization [Figure 1].
Figure 1: Vulnerable groups: From access to utilization

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Utilization is affected by the availability of resources, services and personnel as much as it is by exclusion and discrimination. [10],[13],[14] Utilization is lower among the vulnerable populations as compared to others. [14],[15],[16],[17],[18],[19],[20]


   Social Inclusion from the Lens of Access Top


Social inclusion of vulnerable populations who have been historically excluded has been the focus of the governments, sympathizers; and of affected communities, groups and individuals. Public goods, which should be available to all are limited to a few. [21] Understanding the elements and processes, which create a social divide has been a continuous intellectual pursuit because subordination and marginalization of this group is fairly well-recognized. Identifying and addressing these elements and processes is crucial in creating the enabling environment for inclusion. Participation in social, economic and political activities and processes at various levels and in various capacities is considered synonymous with social inclusion [22] and enables access to resources. Denial of participation results in oppression leading toward social exclusion.

The initial discourse on access was mostly on physical disability. [23] Structural factors affect participation, personal characteristics and limit performing activities for the disabled. [24] Similarly, social discrimination disables persons, groups and communities so as to obstruct participation, leading to oppression and exclusion. In the Indian context, socially excluded people are handicapped by the social divide created by caste based differentials in addition to those created by differentials in literacy levels and economic capabilities. This notion was extended to understand processes through which individuals or groups are wholly or partially excluded from full participation in the society within which they live. [6] "Enabling justice" [23] equips people with social disadvantages for building economic capabilities - social position, political participation and inclusion. The two attributes of exclusion are - (a) multiple aspects of discrimination and the related societal processes; and (b) the institutional structures that are involved in deprivation. In both the situations, some people are kept out (unfair exclusion) and some are included on unfavorable terms (unfair inclusion). Unfair inclusion with unequal treatment is likely to have the same adverse effect as unfair exclusion. [25]

Therefore, the typology of social exclusion affecting universal access to health can be visualized as complete, partial and forced (forms); in specific spheres; and related indicators and consequences [Table 1].
Table 1: Form and sphere of discrimination-indicators and consequences

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In a situation of institutional exclusion and discrimination when policy, organizational structures and the service providers are not sensitive to the concerns of vulnerable populations, utilization is jeopardized. In the service delivery system, there is a minimal effort to involve providers from vulnerable communities at different levels. Why is it that social facilities- school, health center, post office, Panchayat Ghar, for instance, are located proximate to or within residential areas of dominant castes of the village? Why is it that the piped water supply stops before it reaches the living quarters of vulnerable populations in most villages? Why it is that most settlements of the vulnerable populations in the village do not have electricity or are predominantly connected by kuccha roads? Canthose belonging to vulnerable communities reach service delivery centers as freely as others, without fear, verbal abuse, teasing, intimidation, insult, or without physical violence? [13],[26],[27] [Figure 2]
Figure 2: Pathways to utilization of health care services by vulnerable populations (based on conceptual frame work)

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   Conceptualizing Pathways to Utilization Top


Access is an important concept in understanding decision making, participation and inclusion [22] leading to utilization of resources and services. Health-care access can be understood through the concepts of "potential" and "realized" access. Potential access focuses on person and service characteristics related to structures and processes. Realized access comprises of measurable indicators such as time and type of services, and subjective indicators related to users' satisfaction. [28]

Utilization has two broad paths, which function through potential and realized access. In the health care delivery system, refusal to observe certain norms, which are mandatory in care giving, but are often violated while providing care to the dalits are evidence of discrimination. These may be manifested in the form of refusal to touch; enter the house; share the seat, food, water and transportation. The spheres in which discrimination is likely to be visible are care delivery centers. It may also be evident in the care delivery at home, source of water supply, role in local self-governing bodies; anganwadi centers; and health camps for immunization and medical checkups. Availing facilities provided through government programs also affects utilization. [13],[26],[29] It is important to understand whether the vulnerable populations know about these schemes or have ever been discriminated against in being informed about these schemes? Is there a likelihood that they will be informed about such events? How many beneficiaries of such schemes have been from among them? What was the experience of those who were eventually recipients of these benefits? There could also be evidence of unfavorable inclusion where persons from these population groups may have been made part of a health or immunization camp, for instance, to ensure the completion of certain target numbers.


   Service Providers and Universal Access to Health Care (UAHC) Top


Public health includes services and resources that go beyond health-care and affect health indirectly such as safe drinking water; sanitation and drainage; hygiene; housing and basic infrastructure. Prevalence of discrimination in these spheres in various forms impedes UAHC. Most of the basic infrastructural facilities such as electricity, drinking water, road-do not reach or are dysfunctional in residential areas of the vulnerable populations. [13] Utilization is jeopardized if the policy, organizational structures and service providers are not sensitive to the concerns of vulnerable populations.

Providers may withhold information about schemes launched for vulnerable groups or may engage in other forms of discrimination. For instance providers and other personnel have been known to not touch dalit users, not enter their houses and not share information. However sensitivity in providers often arises out of their orientation towards biases and stereotypes related to vulnerable populations.


   Voices from the Field Top


The experience of discrimination in accessing health-care services is the outcome of the interplay between various forces operating in the society, in health-care provisioning, and perception of the self. As children from the vulnerable population groups grow, their experiences acquaint them with this inexplicable practice of discrimination of the religion, which is claimed to be all embracing. It puzzles the young questioning minds who are often "taught" "god is one and we all are his children…!". The experience of discrimination while accessing health-care services varies. Verbal communication and non-verbal gestures of providers are indicative of the inferior status that many dalits were thought to have in their eyes. These could include the choice of words, the manner of speech, the ways in which medicine is dispensed; the space to sit, whether they are offered a place to sit, availability of and access to common sources of drinking water in the health-care facility, the amount of time spent waiting when compared to users from other castes, are some of the markers that users employ to judge discriminatory behavior . Some observations from the field § examining spheres and forms of discrimination suggest that utilization is restricted due to discriminatory practices of providers and co-users of health-care services. From among the spheres of discrimination studied, dispensing of medicine was ranked as the most discriminating; while consulting the care providers and seeking referral was least discriminating. Conduct of the pathological test was second most discriminating hence affected utilization in that order. Non-verbal gestures and ways of, physical interaction-touch (touch roughly/do not touch) and conversation (speak gently) were other areas of most discrimination. Use of demeaning words, providers spending "less time" with the users, was also limiting utilization [Table 2].
Table 2: Ranking of sphere and form of discrimination affecting utilization

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Perception of self through others behavior or attitude towards them also affect utilization. Thus the dominants castes' attitude toward or opinions of lifestyle and living conditions of the dalits may act as deterrents to the use of health-care facilities . Occupations of dalit users were also seen to be associated with perceptions of poor hygiene and led to discriminatory behavior on the part of the providers, for instance rearing of pigs [Table 3].
Table 3: Ranking of hygiene, cleanliness and living conditions - Perception of others

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Living conditions as perceived by the "others" were reflective of inadequacies, which Dalits often suffer from. For instance, "half-clad children" could be more due to poverty than choice. Similarly, "children with runny noses" is more likely the outcome of inaccessible health-care services than the deliberate health condition. Nevertheless, such children and those who "lived with their animals in the same jhopa **" experienced discrimination.


   Conclusion Top


Discrimination is evident in different forms and spheres and practiced by various personnel. Emerging from the foregoing understanding, caste-based exclusion is related to lack of access to services and goods offered by societies. Utilization can happen when there are adequate resources available and sensitive providers dedicated to providing enabling environments; and can be reached and communicated with. Access translates into utilization through the web of adequate resources, conducive policy regime and providers sensitive to social heterogeneity and differential access; and perception of self. Differentials in these factors cause disparity in utilization and are relevant in addressing social inclusion of vulnerable populations.

Note:

* Refers to Scheduled Castes, Scheduled Tribes and Other Backward Castes.

FGD with Children on their understanding of discrimination. Acharya 2010a, 2012 [13],[30]

Content Analysis of the FGDs with children and women on 'visit to the health centre'; and 'visit of care providers'. Acharya 2010b, 2012 [14],[30]

§ Access to Health Care and Pattern of Discrimination - A Study of Dalit Children in Selected Villages ofGujarat and Rajasthan. Children, Social Exclusion and Development.Working Paper Series. Volume 01, Number 02. Indian Institute of Dalit Studies and UNICEF (India), New Delhi 2010a

Based on individual interviews with non-dalits.

** Thatched hut.

 
   References Top

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[PUBMED]    
29.Kumar K. Health of Dalit Women - Issues of Development and Deprivation in Ambedkar Villages of Sonbhadra District, UP [Dissertation]. New Delhi: Centre of Social Medicine and Community Health, School of Social Sciences, Jawaharlal Nehru University; 2010.  Back to cited text no. 29
    
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    Figures

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